Sunday, June 28, 2009

Sidebar: Recent Autism Insurance News from New Jersey, Wisconsin, Michigan, and about TRICARE

Autism Insurance Legislation has been heating up all over the map

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Don't forget to see the recent post on the CURRENT ACTION ITEM to contact our
Oregon Delegation to Congress and urge their support of the ATAA.
Thank you for your action and your support!



We can do it and we can get there.
Thanks for your help and your support!

Saturday, June 27, 2009

VIDEO: What Passage of the Autism Treatment Acceleration Act Would Mean to Families and Children

U.S. Senator Dick Durbin (IL), sponsor of the legislation in the U.S. Senate and supporters of the ATAA,


comment on what is hoped to be gained by families and children throughout the United States by passage of the Autism Treatment Acceleration Act.

Autism Treatment Acceleration Act TV Coverage - YouTube 2:59
April 8, 2009-IL



Don't forget to see the recent post on the CURRENT ACTION ITEM to contact our
Oregon Delegation to Congress and urge their support of the ATAA.
Thank you for your action and your support!

Tuesday, June 23, 2009

ACTION ALERT: Autism Speaks Launches an Autism Treatment Acceleration Act (ATAA) Ad This Week and YOUR HELP NEEDED To Connect With Congress

This week, Autism Speaks is launching a major ad campaign supporting federal autism insurance reform with the goal to be the LOUDEST VOICE ON CAPITOL HILL and move these bills forward.

YOUR PARTICIPATION IS VITAL.

All of our voices are needed to make sure this ad
hits home for Oregon's Congressional Delegation!
In a state with one of the highest prevalence rates in the nation, it is imperative that they sign on and help our kids.

Click here to download a flyer with the information in this blogpost

Click on the picture for the full size ad



This ad campaign is being placed in various publications to raise awareness about the need for CONGRESS TO ACT on Federal autism insurance reform and for members of Congress TO BECOME CO-SPONSORS of the Autism Treatment Acceleration Act (ATAA), S. 819 in the U.S. Senate, and H.R. 2413 in the U.S. House of Representatives.

One key provision of the ATAA requires insurance companies from COAST TO COAST to provide coverage of medically necessary autism treatments, such as Applied Behavior Analysis (ABA) therapy.

Let's make sure that OUR Senators and Representatives SEE THIS AD OVER AND OVER AGAIN and HEAR FROM FAMILIES and friends of families affected by autism--EACH DAY THIS WEEK!

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HOW YOU CAN HELP
in 4 steps
Download-Fax-Follow up -Forward

1. Download and print out a copy of the Autism Speaks ATAA ad HERE!

2. FAX a personalized copy of the ad to our Federal Senators and House District Representatives!

After printing out a copy of the ad, find a good spot on the ad itself, or on a separate sheet of paper, to write a short personal message asking your Senators and House Representative to cosponsor thes bills, S.819 in the Senate and H.R. 2413 in the House.

BE SURE to include the bill number in your message.

Neither of our federal Senators, Sen. Ron Wyden and Sen. Jeff Merkley, nor any other member of the Oregon Delegation to Congress has yet agreed to co-sponsor ATAA - S. 819/H.R. 2413, even though Representatives DeFazio, Wu and Blumenauer are members of the Congressional Autism Caucus.

To find the Fax and Phone information for Congressional Representatives

Senator Ron Wyden
Fax: 202-228-2717; Phone: 202-224-5244




Senator Jeff Merkley
Fax: 202-228-3997 Phone: 202-224-3753




Representative David Wu [District 1-Clatsop, Columbia, Washington, Yamhill and part of Multnomah.]
Fax: 202-225-9497 Phone: 202-225-0855



Representative Greg Walden [District 2-Baker, Crook, Deschutes, Gilliam, Grant, Harney, Hood River, Jackson, Jefferson, Grants Pass area of Josephine, Klamath, Lake, Malheur, Morrow, Sherman, Umatilla, Union, Wallowa, Wasco and Wheeler.]
Fax: 202-225-5774 Phone: 202-225-6730


Representative Earl Blumenauer [District 3-Most of Multnomah and northern part of Clackamas]
Fax: 202-225-8941 Phone: 202-225-4811



Representative Peter DeFazio [District 4-Coos, Curry, Douglas, Lane, Linn, most of Benton and Josephine.]
Fax: 202-225-0032 Phone: 202-225-6416



Representative Kurt Schrader [District 5-All of Lincoln, Marion, Polk and Tillamook, parts of northern Benton, most of Clackamas and parts of southwestern Multnomah]
Fax: 202-225-5699 Phone: 202-225-5711


3. Follow up with a phone call saying,
"Hi. My name is ________________. I am your constituent and live in (City, STATE). I am calling to be sure that you received a copy of the advertisement that I faxed to your office regarding the Autism Treatment Acceleration Act. I would like Senator/Congressman (Name) to cosponsor this important piece of legislation. The bill number is S. 819 (if you are calling a Senator) or H.R. 2413 (if you are calling a House Representative). Thank you so much. I will keep checking back to see if he/she has signed on because this is very important to me."
4. Forward this to as many people as you can, and ask them to do the same thing!
THEY DO NOT HAVE TO HAVE A CHILD WITH AUTISM. Post on message boards in your state or forward to coworkers, neighbors, friends and family and ask them to help you help your child by pressing for appropriate insurance coverage for the premiums you pay!

Spread the word, get people involved and
watch our Representatives really start to sign up to help!

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Sidebar: A VERY Interesting Article on the BC/BS of Michigan Settlement

A Law.com article going into more and different detail than many of the currently circulating stories on the recent settlement by BC/BS in Johns v. Blue Cross Blue Shield of Michigan.

Well worth reading.

Michigan Class Action Settlement on Autism Treatment Hailed as Landmark Case
Tresa Baldas
The National Law Journal
June 23, 2009


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Previous blog post

Friday, June 19, 2009
Sidebar: Blue Cross Blue Shield of Michigan Forced to Pay for Behavioral Therapy for Autism In Landmark Case

Saturday, June 20, 2009

VIDEO: Autism Not Treatable? Sam Summers, MI 4th Grader Disagrees.

This was from the testimony for the Michigan autism bill--Sam Summers, Michigan 4th grader diagnosed with autism at 2, given intensive behavioral intervention...well, let Sam speak for himself.


Friday, June 19, 2009

Sidebar: Blue Cross Blue Shield of Michigan Forced to Pay for Behavioral Therapy for Autism In Landmark Case

Release issued by Mantese and Rossman, P.C., on June 19, 2009

Detroit, Michigan. The family of an autistic child filed a motion in federal court today to confirm settlement of a class action against Blue Cross Blue Shield of Michigan. The family alleged in the suit that the insurer wrongfully refused to cover behavioral therapy for children with autism spectrum disorder (ASD), on the baseless ground that the care was"experimental. "

Under the terms of the settlement reached at a court-ordered conference on Wednesday, June 17, 2009, Blue Cross [of Michigan] has agreed to reimburse all families who paid for behavioral therapy for their children after May 1, 2003, and who were covered under a Blue Cross Blue Shield of Michigan insurance policy. Blue Cross had earlier filed a motion seeking dismissal of virtually the entire case on legal grounds, but the Honorable Stephen J. Murphy III permitted the case to go forward and scheduled the matter for further proceedings, including a settlement conference before Magistrate Michael Hluchaniuk.

The settlement was reached in the case of Christopher Johns v. Blue Cross Blue Shield of Michigan, 08-cv-12272, filed in Detroit. In the suit, the plaintiff alleged that Blue Cross' pattern and practice of characterizing the scientifically established Applied Behavioral Therapy as "experimental, " and thus as excluded under its insurance policies, was arbitrary, capricious, illegal and contradicted by many years of scientific validation.

Under the settlement, Blue Cross [of Michigan] will pay for behavioral therapy rendered to over 100 children in the last six years. Plaintiff's counsel, Gerard Mantese and John J. Conway, were pleased with the settlement.

Mr. Mantese and Mr. Conway issued a joint statement emphasizing:
"No insurer should ever take this approach to needed care for children. Applied Behavioral Analysis therapy is supported by science and is not 'experimental. ' Delays by insurers in authorizing this treatment, when it is covered by insurance policies, should not be tolerated. Research shows that children with autism spectrum disorder need this therapy early on in life and delaying treatment can irreversibly prevent them from achieving their full potential."
Mr. Mantese emphasized that the settlement includes even families who never submitted a claim to Blue Cross, but who obtained this care for their children and were covered by a Blue Cross policy. Mr. Conway believes that this is the first such settlement addressing Applied Behavioral Analysis (ABA) in the country.

ABA therapy is administered under the supervision of licensed psychologists and other professionals. ABA applies one hundred year old concepts of changing behavior through positive and negative reinforcements. The federal suit in which this settlement was achieved centered upon the ABA treatment provided by prestigious Beaumont Hospital and its HOPE Center, including Dr. Ruth Anan and Dr. Lori Warner.

The case settled shortly after Plaintiff's counsel obtained a court order requiring Blue Cross to produce file documents which validated the effectiveness of ABA therapy for treating children with autism spectrum disorder.

Among the documents in the Blue Cross files obtained by Plaintiff's counsel was a draft of a Blue Cross Blue Shield Medical Policy for 2005, which acknowledged the following:
Applied behavioral analysis (ABA) is currently the most thoroughly researched treatment modality for early intervention approaches to autism spectrum disorders and is the standard of care recommended by the American Academy of Pediatrics, National Academy of Sciences Committee and the Association for Science in Autism Treatment, among others.
Blue Cross' own documents further acknowledged that:
The earlier the disorder is diagnosed, the sooner the child can be helped through treatment interventions.
Mr. Mantese stated,
"After we compelled Blue Cross through motion practice to produce all materials supporting its position that this care was allegedly experimental, we received numerous file documents which actually established that ABA therapy works and is highly effective in increasing the functioning of these children."
Mr. Conway emphasized, "We are pleased that we were able to obtain a result which will require Blue Cross to pay for this important care and will alleviate some of the financial strain imposed on over a hundred families by having to pay for this care when it was covered under their insurance policies."

Contact information for the families' attorneys follows:
Gerard Mantese, Esq.
Mantese and Rossman, P.C.
1361 E. Big Beaver Road
Troy, Michigan 48083
248-457-9200 Office
248-515-6419 Cell

John J. Conway, Esq.
John J. Conway, P.C.
645 Griswold St, Ste 3600
Detroit, MI 48226
313-961-6525 Office
313-574-2148 Cell

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Previous newsstories on the case:

Blue Cross Reverses Position on Autism After Federal Court Litigation Intensifies
Monday 11th of May 2009 13:19

Blue Cross ordered to defend stance on autism therapy coverage
Detroit News | March 9, 2009

Wednesday, June 17, 2009

ACTION: How to take action on the federal Autism Treatment Acceleration Acts of 2009 (ATAA)

The below request has been sent out by Autism Votes, and never was a truer word said than,
"Health insurance reform is the buzz word in Washington, DC right now. We need to generate thousands of calls to be sure that our children's needs for access to the treatments and therapies that will help them are being heard!"
We have an opportunity, but we must keep OUR voices and concerns on the front burner and get these bills passed this Congressional session---so it is extremely important to keep in touch with our members of Congress and get them on-board with the ATAAs [S. 819, H.R. 2413].

Previous posts on the bills

Autism Votes CALL FOR ACTION

"We are ramping up our grassroots efforts for the Autism Treatment Acceleration Act and need your immediate attention and support on this issue!

You are receiving this email because you live in a state that worked hard this year to pass autism insurance reform at a state level. Your state legislative efforts have come to an end and you made significant gains this year! Congratulations on all your hard work.

Through this piece of federal legislation, we have the opportunity to end autism insurance discrimination once and for all from coast to coast!

We need your help to do that by calling the following people each day this week!

Health insurance reform is the buzz word in Washington, DC right now. We need to generate thousands of calls to be sure that our children's needs for access to the treatments and therapies that will help them are being heard!

Here's how YOU can help:

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1. CALL YOUR SENATORS IN CONGRESS AND ASK THEM TO CO-SPONSOR THE ATAA (Senate Bill 819)! You can find out who your senators are HERE - be sure to check here to see if they have already decided to co-sponsor the ATAA prior to calling by checking the list of co-sponsors. Your Senators have received a Dear Colleague letter from the bill's original sponsors which you can read here.

2. CALL YOUR CONGRESSMAN AND ASK THEM TO CO-SPONSOR THE ATAA (H.R. 2413)! You can find out who your Congressman is HERE. Be sure to check here to see if they have already agreed to co-sponsor the legislation before you call them.

Not sure of what to say? It's easy! Just say this:

"Hi! My name is ____________. I am a constituent of yours and live in (City,State). I am calling to ask you to cosponsor the Autism Treatment Acceleration Act (give the appropriate bill number - Senate is S. 819 and House is H.R. 2413). We worked very hard to pass similar legislation as this in our state but were not able to do so this session. We need your help to end autism insurance discrimination. Thank you so much."

> Once you have completed your call, you can send emails to the Members of Congress HERE!

3. FORWARD THIS TO 20 OTHER PEOPLE THAT CAN HELP YOU! If you have ever heard someone say, "I wish there was something we could do to help (insert your child's name here)!", now they can. It is a cost effective way to truly help your child and the other children with autism not only in your state, but nationwide.

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We can do this!

For more information on the Autism Treatment Acceleration Act, please visit www.autismvotes.org/ataa.

Happy dialing!

Shelley Hendrix
Director of State Advocacy Relations
Autism Speaks

Friday, June 12, 2009

A Shift in Gears from HB3000 to the Federal Autism Treatment Acceleration Acts

First of all, I want to thank every last parent, family and supporter who threw their all into working on behalf of the passage of HB 3000, Oregon's Autism Insurance Reform Bill, by their articles, letters, testimony, talking to legislators and phone calls. Most bills do not make it as far as HB3000 did, and we gave it a good run and raised awareness of our kids and our issues!

Monday, June 8 was the last day for a hearing to be scheduled for HB 3000 in the Oregon House Rules Committee if it was going to continue in the legislative process. That hearing was not scheduled.

At this point the attention of this blog, and I hope your attention as a supporter of insurance fairness for our kids will shift to the Autism Treatment Acceleration Acts of 2009 in the U.S. Congress, which no doubt many already know about,
S. 819 :A bill to provide for enhanced treatment, support, services, and research for individuals with autism spectrum disorders and their families.

&

H.R. 2413
,
To provide for enhanced treatment, support, services, and research for individuals with autism spectrum disorders and their families.

There are many fine opportunities that will be created for children, adults and families living with autism if these measures can pass in this 111th Congress, and one of them is the insurance fairness that we have been seeking on a state-by-state basis.

There'll be more to come in future posts, but for now I would like to point you to

Again, thank you for the good fight on Oregon HB3000, your continued work on S. 819 and H.R. 2413, and for your continued support of improving things for our children and our families.

We can do it and we can get there.

Thursday, June 11, 2009

SIDEBAR: Video- "Legislative Advocacy for Individuals with [Developmental] Disabilities"

An interesting and informative video from UC MIND, which has some specificity to California in reference to particular advocacy groups and structural differences in that state. That said, the issues discussed are not particular to any one state and there are some good ideas on what makes for successful grassroots advocacy. The message on advocacy "how-tos" picks up after 40 minutes.

Monday, June 8, 2009

COMMENT: Virginia does "poor job" providing autism services, and what that has to do with Oregon.

A couple of hours ago, a news alert from the Richmond Times-Dispatch (VA) came across my desk and definitely got my attention. Why is Virginia of so much interest? During the Oregon House Health Care Committee public hearing on HB 3000, this point was brought up by a consultant to one of the insurance companies,
"...but we will point out that in places like VA, where one of our leading developmental pediatricians comes from, the schools do much more on this [autism], and they feel that they have not even begun to reach the level of what their side of the bargain should do in this...".
And my reaction at the time was,
[Blog author note: Without the particular significance or special insight involved, the description of what was said by the colleague, "leading", or not is what is known as "anecdotal" or "testimonial". It may well be that VA schools are better, or not. If such was sufficient as evidence, the matter at hand, then we could dispense with experimental design altogether. The point is moot and irrelevant of the merits of this legislation. And if retaining it to the question of schools, if the anecdote that VA schools are doing much more but only scratching the surface, what does that say about the level of therapy in any venue available in Oregon?..."
So the headline from Virginia that caught my attention was,

VA. does poor job providing autism services, study says
by Tyler Whitley
Richmond Times-Dispatch
Published: June 8, 2009
"The state [VA] does a poor job of providing services to people with autism, the legislature's watchdog group said today...Parents seeking benefits for autistic children, and insurance lobbyists gearing up to oppose the possibility of mandated insurance benefits that might include autism treatments, filled a room at the General Assembly Building to hear the report...JLARC [Joint Legislative Audit and Review Commission] began the study last year. Its first report recommended that health insurance require that autism treatment be covered. Under heavy pressure from insurance interests and small-business owners, the General Assembly rejected the proposal..."
[Blog author: So that was what was really going on with insurance proposals in Virginia, and what does the JLARC report say (keeping in mind that the conditions in Virginia were presented as superior to that in Oregon)?]

Report of the Joint Legislative Audit and Review Commission To the Governor and The General Assembly of Virginia
Commission Draft: Assessment of Services for Individuals with Autism Spectrum Disorders
June 8, 2009, 256pp.

CHAPTER 2: ASDS CAN OFTEN BE EFFECTIVELY TREATED, RESULTING IN COST SAVING
"...Several treatment approaches have been scientifically shown to meaningfully improve the outcomes of individuals with ASDs, including the commonly referenced applied behavioral analysis (ABA) method. In particular, most young children with ASDs who participate in intensive early intervention programs based on ABA principles experience improvements, with almost half achieving normal levels of functioning and another 40 percent realizing moderate gains. According to cost-benefit analyses, providing intensive treatment to young children can significantly reduce public costs by decreasing the need for special education and other forms of public assistance, with savings likely to accrue over the lifetime of individuals with ASDs. While many approaches have been categorized as effective for treating ASDs, research indicates that packaged programs with a pre-determined curriculum, such as ABA, appear to have more promising results than programs that rely on a more informal mix of interventions..."
Chapter 2: Autism Spectrum Disorders Can Be Effectively Treated, Producing Cost Savings
p.11, "
... The largest body of research exists for interventions based on applied behavior analysis (ABA). ABA-based interventions are supported by approximately 30 years of research pointing to their effectiveness and have been accepted by much of the medical community as effective techniques for treating ASDs, along with several other interventions. Further, research indicates that treatment is beneficial for many and could result in long-term savings of public resources over these individuals’ lifetimes...

See Figure 2: Interventions Have Been Categorized Based on Category: Scientifically Based Practices

"Significant and convincing empirical efficacy and support:
Applied Behavior Analysis, Discrete Trial Training. Pivotal Response Training, LEAP"
p.16, "...By applying the methodology used in the Pennsylvania and Texas studies to Virginia-related data, JLARC staff estimate that the Commonwealth could save approximately $137,400 in special education costs per student with an ASD if EIBI was consistently provided. In fact, the analysis indicates that Virginia could realize savings as long as at least 42 percent of students with ASDs who received EIBI make moderate improvements (require less intensive services and fewer supports), which is a substantially more conservative outcome than the outcomes reported in the research literature..."

p.33 -34, Table 8: Common Arguments Concerning Health Insurance Coverage for ASD-Related Therapies
[yin:] Many treatments are experimental, investigational, or unproven for ASDs. No treatment is known to be effective for all individuals.
[yang] Many in the medical community (including the U.S. Surgeon General, the Institute of Medicine’s National Research Council, and the American Academy of Pediatrics (AAP)), recognize certain therapies as research-based, including speech, occupational, physical, and behavioral therapies such as those based on the principles of applied behavioral analysis (ABA). Medical treatments are generally not effective for everyone who suffers from a given medical condition
Chapter 7: Improving the Delivery of Services to School-Age Virginians With ASDs
p.114, Specific “Packaged” Interventions Appear More Promising, but Many Schools Use the Mixed-Methods Approach
"...Because individualized educational programming often necessitates the use of multiple instructional strategies, Virginia schools commonly rely on a variety of approaches to serve students with ASDs. However, only a minority of schools report using comprehensive packages such as applied behavior analysis (ABA). Further, fewer than ten percent of schools use these packages as their preferred intervention, relying instead on a “mixed methods” approach to meeting the needs of students with ASDs, despite evidence that packages tend to yield better results (Chapter 2). The literature does note that a mixed methods approach could be just as effective as a package, in theory, but that it requires a degree of expertise, planning, and coordination that is often not present in Virginia schools..."
Read the report.

NEWS: U.S. Senate Bill 1169 introduced to expand autism treatment coverage under TRICARE

"On June 3, 2009 S. 1169 was introduced by Senator Kirsten E. Gillibrand (NY), as the Senate-side companion resolution to the previously introduced H.R. 1600. Both bills would "amend title 10, United States Code, to provide for the treatment of autism under TRICARE..."

Full article:
Monday, June 8, 2009 Practitioner Issues in Behavior Analysis SIG Blog

NEWS: Federal S. 1169 joins H.R. 1600 to provide for the treatment of autism under TRICARE


Sunday, June 7, 2009

SIDEBAR: "CLEARING THE AIR ABOUT ABA… And having fun as we do it!"

Friday, June 19th, 2009, from 9:00a – 12:00p at

The Jean Baton Swindells Resource Center for Children and Families

830 NE 47th Avenue, Portland, 97213

Downloadable flyer



CLEARING THE AIR ABOUT

ABA

And having fun as we do it!

Presenters: Sarah L. Schaefer, LPC, BCBA, www.advbehavioralconcepts.com

Mark Vogl, BS, Program Coordinator, CCI Enterprises

plus a special parent testimonial

Parents, professionals, and all “Anti-ABAers” are invited to join us while we present the truth and dispel the myths about

Applied Behavior Analysis

Families and professionals are often faced with various approaches to teach children with special needs. While there is a vast array of approaches, families encounter confusion and doubt about which approach will effectively teach children a new skill or reduce behaviors that interfere with learning. This presentation will present the science of applied behavior analysis while dispelling common misperceptions. It will clarify the basic principles of behavior analysis and how they may be applied to people with a wide variety of needs both in an intensive teaching and natural learning environment.

Friday, June 19th, 2009, from
9:00a – 12:00p at

The Jean Baton Swindells Resource Center for Children and Families

830 NE 47th Avenue, Portland, 97213



Monday, June 1, 2009

NEWSFLASH: Story in the Huffington Post on The federal AutismTreatment Acceleration Acts: S. 819 & H.R. 2413

[Also see previous post on U.S. Resolutions, S. 819 & H.R. 2413. ]

The Autism Treatment Acceleration Act and the Autism Sandbox
Shelley Hendrix Reynolds
Posted: May 31, 2009 06:40 PM
Huffington Post

Please read the full article, but I want to highlight some cogent clauses made by Ms. Reynolds,

"...Despite dutifully paying premiums to insure against the unthinkable that their child could be diagnosed with a disease or disorder, most parents of children with autism cannot get appropriate coverage to treat their child's medical conditions. Not because these parents didn't act responsibly and do their part but because insurance did not do their part...

Why should you care about their plight as an average tax paying citizen without a child with autism? It directly affects your own checking account...

No one would dream of treating a child with a life threatening illness at any less than what the doctor recommends. No one would ever expect that the public education system to be responsible for curing that disease and yet, insurance companies do just that...shirk their accountability to the education system instead of providing children with appropriate coverage when they are toddlers making them more likely to be mainstreamed into a regular education setting. Providing access to these treatments saves tax payer's dollars, creates new job markets and most importantly, gives these children an opportunity to become tax payers themselves one day with independent lives via a fiscally responsible solution to a growing societal issue..."
See the full article at the Huffington Post

and for more information and TO ACT on the Autism Treatment Acceleration Act(s), see Autismvotes.