Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Wednesday, September 23, 2009

SIDEBAR: Monday, Sept. 28 Meeting of the Oregon Commission on Autism Spectrum Disorder

Meeting Announcement
Oregon Commission on Autism Spectrum Disorder
[N.B.-list of members and additional background info below *]

Meeting Time:
Monday, September 28, 2009
9:00 am to 4:00 pm
Public Comment is welcome but may be limited due to time constraints.

Meeting Place:
Oregon State Capitol
Hearing Room C
900 Court Street NE

--------------------------------

*The members of the Commission, established by
EXECUTIVE ORDER NO. 09 – 07

http://governor.oregon.gov/Gov/pdf/eo0907.pdf
are:

Marilyn Gense, Chair
Special Education Coordinator, Willamette Education Service District
Position
: At-Large

Jean Rystrom, Vice Chair
Regional Practice Director of Pediatrics, Kaiser Permanente
Position: Insurance

Joyce Bernheim
Health Care Attorney
Position
: Parent of a child

Gleason Eakin
Retired Educator, Administrator, and Founder of the Northwest Autism Foundation
Position: Advocacy Organization

Chris Edwards
Legislator
Position: State Representative

Kirby Erickson
Autism Specialist, Southern Oregon Education Service District
Position: Parent of an adult

Robert Nickel, M.D.
Developmental Pediatrician, Child Development and Rehabilitation Center, OHSU
Position: Medical Community

Michelle (Mickey) Pardew
Professor, Special Education Division at Western Oregon University
Position
: Higher Education

Dora Raymaker
Writer, Researcher, Trainer
Position: Consumer

Eric Richards
Director of Operations for the Office of Student Learning and Partnerships, Oregon Department of Education
Position
: Oregon Department of Education

Clyde Saiki
Deputy Director, Oregon Department of Human Services
Position: Oregon Department of Human Services

Kristi Sandvik
Executive Director of Special Education Programs, Hillsboro School District
Position
: Local Education

-----------
Background information:
Previous work by the Oregon Autism Project
http://ocdd.org/index.php/ocdd/getinvolved/135/

Sunday, June 28, 2009

Sidebar: Recent Autism Insurance News from New Jersey, Wisconsin, Michigan, and about TRICARE

Autism Insurance Legislation has been heating up all over the map

-----------

Don't forget to see the recent post on the CURRENT ACTION ITEM to contact our
Oregon Delegation to Congress and urge their support of the ATAA.
Thank you for your action and your support!



We can do it and we can get there.
Thanks for your help and your support!

Saturday, June 27, 2009

VIDEO: What Passage of the Autism Treatment Acceleration Act Would Mean to Families and Children

U.S. Senator Dick Durbin (IL), sponsor of the legislation in the U.S. Senate and supporters of the ATAA,


comment on what is hoped to be gained by families and children throughout the United States by passage of the Autism Treatment Acceleration Act.

Autism Treatment Acceleration Act TV Coverage - YouTube 2:59
April 8, 2009-IL



Don't forget to see the recent post on the CURRENT ACTION ITEM to contact our
Oregon Delegation to Congress and urge their support of the ATAA.
Thank you for your action and your support!

Tuesday, June 23, 2009

Sidebar: A VERY Interesting Article on the BC/BS of Michigan Settlement

A Law.com article going into more and different detail than many of the currently circulating stories on the recent settlement by BC/BS in Johns v. Blue Cross Blue Shield of Michigan.

Well worth reading.

Michigan Class Action Settlement on Autism Treatment Hailed as Landmark Case
Tresa Baldas
The National Law Journal
June 23, 2009


---------------
Previous blog post

Friday, June 19, 2009
Sidebar: Blue Cross Blue Shield of Michigan Forced to Pay for Behavioral Therapy for Autism In Landmark Case

Saturday, June 20, 2009

VIDEO: Autism Not Treatable? Sam Summers, MI 4th Grader Disagrees.

This was from the testimony for the Michigan autism bill--Sam Summers, Michigan 4th grader diagnosed with autism at 2, given intensive behavioral intervention...well, let Sam speak for himself.


Friday, June 19, 2009

Sidebar: Blue Cross Blue Shield of Michigan Forced to Pay for Behavioral Therapy for Autism In Landmark Case

Release issued by Mantese and Rossman, P.C., on June 19, 2009

Detroit, Michigan. The family of an autistic child filed a motion in federal court today to confirm settlement of a class action against Blue Cross Blue Shield of Michigan. The family alleged in the suit that the insurer wrongfully refused to cover behavioral therapy for children with autism spectrum disorder (ASD), on the baseless ground that the care was"experimental. "

Under the terms of the settlement reached at a court-ordered conference on Wednesday, June 17, 2009, Blue Cross [of Michigan] has agreed to reimburse all families who paid for behavioral therapy for their children after May 1, 2003, and who were covered under a Blue Cross Blue Shield of Michigan insurance policy. Blue Cross had earlier filed a motion seeking dismissal of virtually the entire case on legal grounds, but the Honorable Stephen J. Murphy III permitted the case to go forward and scheduled the matter for further proceedings, including a settlement conference before Magistrate Michael Hluchaniuk.

The settlement was reached in the case of Christopher Johns v. Blue Cross Blue Shield of Michigan, 08-cv-12272, filed in Detroit. In the suit, the plaintiff alleged that Blue Cross' pattern and practice of characterizing the scientifically established Applied Behavioral Therapy as "experimental, " and thus as excluded under its insurance policies, was arbitrary, capricious, illegal and contradicted by many years of scientific validation.

Under the settlement, Blue Cross [of Michigan] will pay for behavioral therapy rendered to over 100 children in the last six years. Plaintiff's counsel, Gerard Mantese and John J. Conway, were pleased with the settlement.

Mr. Mantese and Mr. Conway issued a joint statement emphasizing:
"No insurer should ever take this approach to needed care for children. Applied Behavioral Analysis therapy is supported by science and is not 'experimental. ' Delays by insurers in authorizing this treatment, when it is covered by insurance policies, should not be tolerated. Research shows that children with autism spectrum disorder need this therapy early on in life and delaying treatment can irreversibly prevent them from achieving their full potential."
Mr. Mantese emphasized that the settlement includes even families who never submitted a claim to Blue Cross, but who obtained this care for their children and were covered by a Blue Cross policy. Mr. Conway believes that this is the first such settlement addressing Applied Behavioral Analysis (ABA) in the country.

ABA therapy is administered under the supervision of licensed psychologists and other professionals. ABA applies one hundred year old concepts of changing behavior through positive and negative reinforcements. The federal suit in which this settlement was achieved centered upon the ABA treatment provided by prestigious Beaumont Hospital and its HOPE Center, including Dr. Ruth Anan and Dr. Lori Warner.

The case settled shortly after Plaintiff's counsel obtained a court order requiring Blue Cross to produce file documents which validated the effectiveness of ABA therapy for treating children with autism spectrum disorder.

Among the documents in the Blue Cross files obtained by Plaintiff's counsel was a draft of a Blue Cross Blue Shield Medical Policy for 2005, which acknowledged the following:
Applied behavioral analysis (ABA) is currently the most thoroughly researched treatment modality for early intervention approaches to autism spectrum disorders and is the standard of care recommended by the American Academy of Pediatrics, National Academy of Sciences Committee and the Association for Science in Autism Treatment, among others.
Blue Cross' own documents further acknowledged that:
The earlier the disorder is diagnosed, the sooner the child can be helped through treatment interventions.
Mr. Mantese stated,
"After we compelled Blue Cross through motion practice to produce all materials supporting its position that this care was allegedly experimental, we received numerous file documents which actually established that ABA therapy works and is highly effective in increasing the functioning of these children."
Mr. Conway emphasized, "We are pleased that we were able to obtain a result which will require Blue Cross to pay for this important care and will alleviate some of the financial strain imposed on over a hundred families by having to pay for this care when it was covered under their insurance policies."

Contact information for the families' attorneys follows:
Gerard Mantese, Esq.
Mantese and Rossman, P.C.
1361 E. Big Beaver Road
Troy, Michigan 48083
248-457-9200 Office
248-515-6419 Cell

John J. Conway, Esq.
John J. Conway, P.C.
645 Griswold St, Ste 3600
Detroit, MI 48226
313-961-6525 Office
313-574-2148 Cell

--------------
Previous newsstories on the case:

Blue Cross Reverses Position on Autism After Federal Court Litigation Intensifies
Monday 11th of May 2009 13:19

Blue Cross ordered to defend stance on autism therapy coverage
Detroit News | March 9, 2009

Monday, June 8, 2009

COMMENT: Virginia does "poor job" providing autism services, and what that has to do with Oregon.

A couple of hours ago, a news alert from the Richmond Times-Dispatch (VA) came across my desk and definitely got my attention. Why is Virginia of so much interest? During the Oregon House Health Care Committee public hearing on HB 3000, this point was brought up by a consultant to one of the insurance companies,
"...but we will point out that in places like VA, where one of our leading developmental pediatricians comes from, the schools do much more on this [autism], and they feel that they have not even begun to reach the level of what their side of the bargain should do in this...".
And my reaction at the time was,
[Blog author note: Without the particular significance or special insight involved, the description of what was said by the colleague, "leading", or not is what is known as "anecdotal" or "testimonial". It may well be that VA schools are better, or not. If such was sufficient as evidence, the matter at hand, then we could dispense with experimental design altogether. The point is moot and irrelevant of the merits of this legislation. And if retaining it to the question of schools, if the anecdote that VA schools are doing much more but only scratching the surface, what does that say about the level of therapy in any venue available in Oregon?..."
So the headline from Virginia that caught my attention was,

VA. does poor job providing autism services, study says
by Tyler Whitley
Richmond Times-Dispatch
Published: June 8, 2009
"The state [VA] does a poor job of providing services to people with autism, the legislature's watchdog group said today...Parents seeking benefits for autistic children, and insurance lobbyists gearing up to oppose the possibility of mandated insurance benefits that might include autism treatments, filled a room at the General Assembly Building to hear the report...JLARC [Joint Legislative Audit and Review Commission] began the study last year. Its first report recommended that health insurance require that autism treatment be covered. Under heavy pressure from insurance interests and small-business owners, the General Assembly rejected the proposal..."
[Blog author: So that was what was really going on with insurance proposals in Virginia, and what does the JLARC report say (keeping in mind that the conditions in Virginia were presented as superior to that in Oregon)?]

Report of the Joint Legislative Audit and Review Commission To the Governor and The General Assembly of Virginia
Commission Draft: Assessment of Services for Individuals with Autism Spectrum Disorders
June 8, 2009, 256pp.

CHAPTER 2: ASDS CAN OFTEN BE EFFECTIVELY TREATED, RESULTING IN COST SAVING
"...Several treatment approaches have been scientifically shown to meaningfully improve the outcomes of individuals with ASDs, including the commonly referenced applied behavioral analysis (ABA) method. In particular, most young children with ASDs who participate in intensive early intervention programs based on ABA principles experience improvements, with almost half achieving normal levels of functioning and another 40 percent realizing moderate gains. According to cost-benefit analyses, providing intensive treatment to young children can significantly reduce public costs by decreasing the need for special education and other forms of public assistance, with savings likely to accrue over the lifetime of individuals with ASDs. While many approaches have been categorized as effective for treating ASDs, research indicates that packaged programs with a pre-determined curriculum, such as ABA, appear to have more promising results than programs that rely on a more informal mix of interventions..."
Chapter 2: Autism Spectrum Disorders Can Be Effectively Treated, Producing Cost Savings
p.11, "
... The largest body of research exists for interventions based on applied behavior analysis (ABA). ABA-based interventions are supported by approximately 30 years of research pointing to their effectiveness and have been accepted by much of the medical community as effective techniques for treating ASDs, along with several other interventions. Further, research indicates that treatment is beneficial for many and could result in long-term savings of public resources over these individuals’ lifetimes...

See Figure 2: Interventions Have Been Categorized Based on Category: Scientifically Based Practices

"Significant and convincing empirical efficacy and support:
Applied Behavior Analysis, Discrete Trial Training. Pivotal Response Training, LEAP"
p.16, "...By applying the methodology used in the Pennsylvania and Texas studies to Virginia-related data, JLARC staff estimate that the Commonwealth could save approximately $137,400 in special education costs per student with an ASD if EIBI was consistently provided. In fact, the analysis indicates that Virginia could realize savings as long as at least 42 percent of students with ASDs who received EIBI make moderate improvements (require less intensive services and fewer supports), which is a substantially more conservative outcome than the outcomes reported in the research literature..."

p.33 -34, Table 8: Common Arguments Concerning Health Insurance Coverage for ASD-Related Therapies
[yin:] Many treatments are experimental, investigational, or unproven for ASDs. No treatment is known to be effective for all individuals.
[yang] Many in the medical community (including the U.S. Surgeon General, the Institute of Medicine’s National Research Council, and the American Academy of Pediatrics (AAP)), recognize certain therapies as research-based, including speech, occupational, physical, and behavioral therapies such as those based on the principles of applied behavioral analysis (ABA). Medical treatments are generally not effective for everyone who suffers from a given medical condition
Chapter 7: Improving the Delivery of Services to School-Age Virginians With ASDs
p.114, Specific “Packaged” Interventions Appear More Promising, but Many Schools Use the Mixed-Methods Approach
"...Because individualized educational programming often necessitates the use of multiple instructional strategies, Virginia schools commonly rely on a variety of approaches to serve students with ASDs. However, only a minority of schools report using comprehensive packages such as applied behavior analysis (ABA). Further, fewer than ten percent of schools use these packages as their preferred intervention, relying instead on a “mixed methods” approach to meeting the needs of students with ASDs, despite evidence that packages tend to yield better results (Chapter 2). The literature does note that a mixed methods approach could be just as effective as a package, in theory, but that it requires a degree of expertise, planning, and coordination that is often not present in Virginia schools..."
Read the report.

NEWS: U.S. Senate Bill 1169 introduced to expand autism treatment coverage under TRICARE

"On June 3, 2009 S. 1169 was introduced by Senator Kirsten E. Gillibrand (NY), as the Senate-side companion resolution to the previously introduced H.R. 1600. Both bills would "amend title 10, United States Code, to provide for the treatment of autism under TRICARE..."

Full article:
Monday, June 8, 2009 Practitioner Issues in Behavior Analysis SIG Blog

NEWS: Federal S. 1169 joins H.R. 1600 to provide for the treatment of autism under TRICARE


Sunday, June 7, 2009

SIDEBAR: "CLEARING THE AIR ABOUT ABA… And having fun as we do it!"

Friday, June 19th, 2009, from 9:00a – 12:00p at

The Jean Baton Swindells Resource Center for Children and Families

830 NE 47th Avenue, Portland, 97213

Downloadable flyer



CLEARING THE AIR ABOUT

ABA

And having fun as we do it!

Presenters: Sarah L. Schaefer, LPC, BCBA, www.advbehavioralconcepts.com

Mark Vogl, BS, Program Coordinator, CCI Enterprises

plus a special parent testimonial

Parents, professionals, and all “Anti-ABAers” are invited to join us while we present the truth and dispel the myths about

Applied Behavior Analysis

Families and professionals are often faced with various approaches to teach children with special needs. While there is a vast array of approaches, families encounter confusion and doubt about which approach will effectively teach children a new skill or reduce behaviors that interfere with learning. This presentation will present the science of applied behavior analysis while dispelling common misperceptions. It will clarify the basic principles of behavior analysis and how they may be applied to people with a wide variety of needs both in an intensive teaching and natural learning environment.

Friday, June 19th, 2009, from
9:00a – 12:00p at

The Jean Baton Swindells Resource Center for Children and Families

830 NE 47th Avenue, Portland, 97213



Thursday, May 28, 2009

NEWSFLASH: Connecticut passes autism reform bill

CT Substitute Bill No. 301 passed in the House by roll call vote, has been approved by both legislative houses and now goes to enrollment and the CT governor for signature.

Vote for SB-301 Roll Call Number 307
Taken on 05/27/09 AS AMENDED
The Speaker ordered the vote be taken by roll call at 10:12 p.m.
Yes 140, Nay 2. Number required for passage: 72

Substitute Bill No. 301
January Session, 2009 *_____SB00301APP___041609____*

AN ACT CONCERNING HEALTH INSURANCE COVERAGE FOR
AUTISM SPECTRUM DISORDERS.

12 (3) "Behavioral therapy" means interactive therapies derived from
13 evidence-based research that are provided to children less than
14 thirteen years of age, including, but not limited to, applied behavior
15 analysis that is provided or supervised by a behavior analyst who is
16 certified by the Behavior Analyst Certification Board.

FULL TEXT OF THE SUBSTITUTE BILL
http://www.cga.ct.gov/2009/TOB/s/pdf/2009SB-00301-R03-SB.pdf

Status and all info,
http://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=301&which_year=2009&SUBMIT1.x=0&SUBMIT1.y=0&SUBMIT1=Normal

Friday, May 15, 2009

ACTION ALERT : US House version of "Autism Treatment Acceleration Act" introduced

[Received this message from Autism Votes Fri, May 15.
FYI, this is House Resolution 2143 (H.R. 2413)]

H.R.2413
Title: To provide for enhanced treatment, support, services, and research for individuals with autism spectrum disorders and their families.
Sponsor: Rep Doyle, Michael F. [PA-14] (introduced 5/14/2009) Cosponsors (3)
Latest Major Action: 5/14/2009 Referred to House committee. Status: Referred to the Committee on Energy and Commerce, and in addition to the Committees on Education and Labor, Oversight and Government Reform, and Armed Services, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

and is the companion bill to the Senate version,

S.819
Title: A bill to provide for enhanced treatment, support, services, and research for individuals with autism spectrum disorders and their families.
Sponsor: Sen Durbin, Richard [IL] (introduced 4/2/2009) Cosponsors (7)
Latest Major Action: 4/2/2009 Referred to Senate committee. Status: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.


Dear Autism Advocate,

Autism Speaks, the nation’s largest autism science and advocacy organization, today applauded Representatives Mike Doyle (D-PA), Chris Smith (R-NJ), Eliot Engel (D-NY), and Hank Johnson (D-GA) for their introduction of a House companion bill [HR 2143] to the Senate's Autism Treatment Acceleration Act (ATAA) [S.819], which was introduced last month by Senators Richard Durbin (D-IL), Robert Casey (D-PA), and Robert Menendez (D-NJ). Like the Senate version, the House version of the ATAA (H.R. 2413) is comprehensive federal legislation that addresses several critical challenges facing the autism community, including increased funding for scientific research, treatment and services. The ATAA incorporates provisions from the Expanding the Promise of Individuals with Autism Act (EPIAA), originally proposed by Representatives Doyle, Smith, Engel, and former-Representative Chip Pickering.

As in the Senate's ATAA bill, a key section of the House bill requires all insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder (ASDs), including coverage of Applied Behavior Analysis (ABA) therapy – a medically-necessary, evidence-based autism treatment. While the number of states that have enacted comprehensive autism insurance reform legislation has grown to ten, most state insurers are still allowed to specifically exclude coverage for these critical services, which can cost upward of $50,000 a year – well beyond the means of most families.

The House version of the bill also addresses the unique needs of adults with ASDs, creating a demonstration project with one-year planning grants and multi-year implementation grants for the provision of service for adults with autism. In addition, it creates the Network for Autism Spectrum Disorders Research and Services aimed at accelerating the dissemination and utilization of critical, new information, moving it from “bench to bedside” as quickly as possible.


Now Help US Get ATAA Passed!:


1. CONTACT YOUR FEDERAL REPRESENTATIVE! Urge him/her to become a cosponsor of the ATAA bill, H.R. 2413.

> Call your Representative's office and let him/her know that you support the ATAA bill, H.R. 2413, and you want your Representative to become a cosponsor today. Click here to find the name and phone number for your federal Representative!

> Send an email to your Representative! Autism Votes has written part of the email message for you. All you need to do is fill in the empty box with your story about your family's experience with autism and how the ATAA bill will help. Click here to send an email to your Representative!

2. STAY INFORMED ON THE ATAA BILL! Sign up to receive Autism Votes email alerts and stay informed on the progress of the ATAA bill.

3. FORWARD THIS EMAIL TO FRIENDS AND FAMILY! Get your friends and family involved in getting the ATAA bill passed.

For a complete summary description of both the House and Senate ATAA bills, visit our website at www.AutismVotes.org/ATAA.

Sincerely,

Elizabeth Emken
Vice President, Government Relations
Autism Speaks

-----------------

Friday, May 8, 2009

FAQ to use when speaking to elected officials about HB 3000


Please use this FAQ sheet when speaking with your elected officials.

FAQ for Oregon House Bill 3000 (HB 3000):
Autism Insurance Reform

Sponsored by: Representatives Buckley, Greenlick, C. Edwards, Kotek, Tomei,
and Senator Bates

-----------------------------

  • How does autism impact the constituents of my district? Autism is a devastating disorder affecting an epidemic proportion of 1 in 89 children in your district. These children have an average life expectancy, generally outliving their parents, potentially their siblings and other family members.

  • Is there a cure for autism? AUTISM IS TREATABLE. With appropriate application of recommended treatment, 30 years of research has shown us that children can overcome the severe symptoms of their disorder to lead very productive lives. In contrast, a 2006 Harvard Study indicates that without appropriate intervention a person with autism will have a societal impact of $3.2 Million each over the course of their lifetime.

  • Do insurance companies cover autism now? At this time, most private insurance policies specifically exclude most treatments for autism, even when the service is otherwise covered by the health plan. HB 3000 ends this discriminatory practice against children with autism.

  • What are the costs? The insurance industry’s own association – the Council for Affordable Health Insurance – estimates that mandated autism benefits costs by LESS than 1% increase premium

  • What are the costs to the state? HB 3000 actually reduces big government --removing the need, and future dependence of families on state governmental agencies to care for their children. It reduces future Medicaid services, special education costs, and adult services, housing and care, saving our state millions of dollars.

  • Doesn’t our Educational System cover these treatments? Opponents of HB 3000 have intimated that our special education system provides these services. Besides the fact that you are hard pressed to find a school in our state that does provide ABA, it is not the job of the Oregon Public School System to ameliorate or recover the medical condition of children with a neurobiological disorder. Their job is to provide them with an education in the least restrictive environment. We do not expect school systems to handle the medical care of children with AIDS, Cancer or Diabetes and we shouldn't expect school systems to handle the medical care of children with autism either.

  • Does this create a significant economic burden to business owners? These societal costs will be there in one way or another. Opponents of HB 3000 may say this bill places unnecessary economic burdens on business owners. Would the business owners in your district prefer a small rate of impact at $1/month per policy in insurance costs or higher taxes in the future?

  • Will HB3000 help or hurt Oregon’s economy? HB 3000 will definitely generate new job markets for workers in Oregon and stimulate the economy. The implementation of this legislation will provide new jobs for speech therapists, occupational therapists, applied behavior analysis therapists, physical therapists and more creating living wage jobs for Oregon residents and encouraging people to move to Oregon to participate in this human service delivery. Better wages and more residents equal a larger tax base from which to pull, benefiting everyone. Most of these children require one on one interaction requiring one adult worker full-time, per child covered, by this legislation.




Tuesday, April 28, 2009

From the Oregonian on ABA and HB 3000


Families of the autistic struggle with care and costs
by Bryan Denson, The Oregonian Tuesday April 28, 2009, 7:22 PM
Photos by Benjamin Brink/The Oregonian

Annotated excerpts with links to additional info; comments in red.

"Joe Joe McHenry, 4, uses toys to learn pronouns during a recent morning session with autism behavioral therapist Emily Hoyt. Joe Joe's mom, Lisa McHenry, says the intensive therapy has been vital to his development.
...But McHenry was astonished to learn that her health insurance didn't cover a penny of the expensive treatment...
Autism is also on center stage in Salem, and for good reason. U.S. prevalence of the brain disorder is about 1 in 150, according to the Centers for Disease Control and Prevention [1], but some estimates based on school data put Oregon's rate as high as 1 in 87 [2]. Policymakers warn of an approaching "autism tsunami" that will wash over the state's already troubled educational systems...
autism advocates and insurers are squared off over House Bill 3000. The proposed law would require insurance companies to pay up to $36,000 a year for Oregonians younger than 21 enrolled in the kind of intensive behavioral therapy Joe Joe McHenry undergoes....
[Blog Author note: The key phrase being "up to". While the most challenged children may require the entire amount specified under the cap, many children will probably require less and the cost should decrease with improvement through treatment, since the goal is to intervene early, and enable as many children to enter elementary school with no, or minimal aids. Some students will require more support and intervention. Cost analyses done by the actuarial firm of Oliver Wyman Actuarial Accounting, Inc., cites figures of a 0.1% increase in per policy cost in Texas since the passage of their mandate in 2007, with estimated per-policy costs for other states well under 1% (range 0.36- 0.75%)[3][4][5][6]. This corroborates with data from the states of Indiana and Minnesota which have had this coverage for several years [7]. In South Carolina, since passage of their autism insurance reform mandate, some insurers who were not required to provide the coverage under the law are choosing to do so voluntarily [8]. Canada's fiscal study of current cost vs. future savings assessed that current investment in intensive behavioral therapy will represent a future fiscal savings. [9] ]

Insurance companies generally pay for drugs that improve symptoms of autism. But they have been slow to embrace the concept of paying for the kind of behavioral therapy Joe Joe undergoes, describing it as not medically necessary [10] or experimental in nature [11].

This bewilders Laura Schreibman, Ph.D., a veteran autism researcher at the University of California at San Diego [12]...Though scientists are far from agreeing on the origins of autism, Schreibman believes it is a neurodevelopmental disorder present from birth that appears to be genetic. It is clearly a medical issue, she said...
"There's no other form of treatment for children with autism that's been demonstrated -- I mean empirically demonstrated [13] -- to be effective with these kids," Schreibman said. "I just don't know how much research and how much literature has to amass [14] before insurance companies are going to say, 'Yeah, OK.'"

FULL ARTICLE

-------------------------------
  1. Prevalence of the Autism Spectrum Disorders in Multiple Areas of the United States, Surveillance Years 2000 and 2002. Centers for Disease Control and Prevention, Department of Health and Human Services. Date March 11, 2009 Content source: National Center on Birth Defects and Developmental Disabilities. Accessed April 28, 2009.
    http://www.cdc.gov/ncbddd/dd/addmprevalence.htm

  2. "Services Aren't Keeping Up With Autism". Oregon Public Broadcasting (OPB) News. August 20, 2008.
    Accessed April 28, 2009.
    http://news.opb.org/article/2871-services-arent-keeping-autism/

  3. Actuarial Cost Estimate: Georgia Senate Bill 161 An Act Relating to Insurance Coverage for Autism Oliver Wyman Actuarial Consulting, Inc., Marc Lambright, FSA, MAAA, March 2, 2009
    From Autism Votes

  4. Actuarial Cost Estimate: Kansas Senate Bill 12 An Act Relating to Insurance Coverage for Autism Oliver Wyman Actuarial Consulting, Inc., Marc Lambright, FSA, MAAA, March 2, 2009
    Addendum

    From Autism Votes

  5. Presentation by Lorri Unumb, Esq., Senior Policy Analyst, Autism Speaks, in public testimony to the Oregon House Health Care Committee, April 8, 2009.

  6. Lorri Unumb, Esq., Senior Policy Analyst, Autism Speaks. (Personal communication)

  7. Motiwala, S. S., Gupta, S., & Lilly, M. B. (2006). The cost-effectiveness of expanding intensive behavioural intervention to all autistic children in Ontario [Canada]. Healthcare Policy, 1(2), 135-151.

  8. One definition: MEDICALLY NECESSARY – means any care, treatment, intervention, service or item which will or is reasonably expected to do any of the following: (i) prevent the onset of an illness, condition, injury, disease or disability; (ii) reduce or ameliorate the physical, mental or developmental effects of an illness, condition, injury, disease or disability; or (iii) assist to achieve or maintain maximum functional activity in performing daily activities."

  9. Petitioner File No. 85641-001.STATE OF MICHIGAN DEPARTMENT OF LABOR & ECONOMIC GROWTH OFFICE OF FINANCIAL AND INSURANCE SERVICES Before the Commissioner of Financial and Insurance Services. Issued and entered 11/27/2007.
    In the matter of XXXXX v Blue Cross Blue Shield of Michigan, Respondent
    http://www.michigan.gov/documents/dleg/85641_BCBSM_11-27-07.pdf_222301_7.pdf
    Accessed April 28, 2009.
    Determined that ABA was an appropriate covered benefit, not educational and not experimental.

  10. UCSD Autism Research Program, University of California, San Diego
    Accessed April 28, 2009.

  11. Applied Behavior Analysis and Neurodevelopmental Disorders: Overview and Summary of Scientific Support. Louis P. Hagopian & Eric W. Boelter. The Kennedy Krieger Institute and Johns Hopkins University School of Medicine. Accessed April 28, 2009.
    http://www.kennedykrieger.org/kki_misc.jsp?pid=4761

  12. Summaries of Research Evidence EIBI Comprehensive Interventions. p. 9-11, 13-16, from The Science and Art of Behavioural Autism Interventions: Designing Programs with Evidence and Compassion. Shahla Alai-Rosales, Ph.D., BCBA. February, 2009.
    ,

Sunday, April 26, 2009

ABA and Neurodevelopmental Disorders - Scientific Support


Authors: Louis P. Hagopian & Eric W. Boelter
The Kennedy Krieger Institute and Johns Hopkins University School of Medicine


"Applied Behavior Analysis Defined.
Behavior analysis is the systematic study of variables that influence behavior (Sulzer-Azaroff & Mayer, 1991). Applied behavior analysis (ABA) is a discipline concerned with the application of behavioral science in real-world settings such as clinics or schools with the aim of addressing socially important issues such as behavior problems and learning (Baer, Wolf, & Risley, 1968). Procedures derived from the discipline of ABA have been implemented to assess and treat a broad range of behaviors with individuals diagnosed with intellectual and developmental disabilities. However, despite more than 40 years of applied behavior analytic research there continues to be misperceptions about ABA. One misperception is that ABA is a standardized treatment program that is used for a specific type of problem and with specific types of individuals. For example, some incorrectly believe that ABA is a type of therapy or a specific procedure for teaching children with autism, and that it is synonymous with “Lovaas Therapy” or “discrete trial training.” Although discrete trial training represents one type of ABA-based approach, the field of ABA is much broader and includes a range of tactics, methods, and procedures that have been shown to be effective for many different types of problems. Features common to all ABA-based approaches are the objective measurement of behavior, precise control of the environment, and use of procedures based on scientifically established principles of behavior. Any clinical procedure or research investigation adhering to these basic criteria can be considered to be an ABA-based procedure. This includes “functional behavioral assessment,” and approaches such as “Positive Behavioral Support,” and forms of “Behavior Therapy” that rely on direct observation of behavior and analysis of behavior-environment relations..."
FULL ARTICLE
  • Applied Behavior Analysis Defined
  • Scientific Support for Applied Behavior Analysis
  • Application of ABA-based procedures across settings and populations
  • Scientific, Professional, and Government Organizations’ Position on Applied Behavior Analysis.
  • Empirically Supported Treatments for Problems Associated with Mental Retardation, Autism and Related Disorders.
  • Legislative Rulings in Support of Funding and Access to ABA-Based Services.
  • Link to list of references

Saturday, April 25, 2009

Reminder: April 29 is Autism Advocacy Day at the Capitol!

Information on Autism Advocacy Day, April 29, 2009, Room 350, State Capitol, Salem, Oregon

With HB 3000 the Autism Insurance Reform Bill, the formation of the Governor's Commission on Autism, and other policy developments-this may be the most important Advocacy Day ever!

See below flyer for RSVP information and schedule of events

Visitor Services Phone: 503-986-1388
Americans with Disabilities Act (ADA) Resources at the Capitol

Join Us April 29 for Autism Day at the Capitol!

How ABA/EIBI Can Change Autism Trajectory

"...Early intensive intervention offers considerable benefit.
This concept became clear in the 1980s and has wide support today,[3],[4],[5] based on the success of early training compared with treatment that starts after children begin school...there is evidence that every year intervention is delayed progressively reduces outcome,...Brain plasticity refers to this ability of the brain to change under genetic and environmental forces, and this plasticity is at the heart of why earlier intervention works so much better than later intervention...So what does this have to do with autism? Plasticity explains why autism...can be helped by intervention in the form of intensive teaching, and why the younger the intervention is started, the better it works...The concept that early intervention is about brain plasticity is growing. [3],[8]..."
ARTICLE
Special Commentary: How Can Early, Intensive Training Help a Genetic Disorder?
William A. Altemeier, MD; and Leah E. Altemeier, PhD
Pediatric Annals 38(4), 167-172. March 2008,

SELECTED REFERENCES

3. Dawson G. (2008). Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder.
Development and Psychopathology, 20(3), 775-804.
doi:10.1017/S0954579408000370

4. Lovaas I.O. (1987).
Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55, 3-9.

5. Johnson CP, Meyers SM (2007).
Council on Children with disabilities. Identification and evaluation of children with autism spectrum disorder. Pediatrics, 120(5), 1183-1215.
doi:10.1542/peds.2007-2361

8. Oberman L. M., & Pascual-Leone, A. (2008). Cortical plasticity: A proposed mechanism by which genomic factors lead to the behavioral and neurological phenotype of autism spectrum and psychotic-spectrum disorders.
Behavioral and Brain Science, 31(3), 276-277.
doi:10.1017/S0140525X08004378

Monday, April 20, 2009

What's at stake--Best Outcome From Autism

Breaking Barriers: "Can You Recover From Autism?"
MSNBC, 5:17min
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