Showing posts with label HB 3000. Show all posts
Showing posts with label HB 3000. Show all posts

Thursday, May 28, 2009

ACTION ALERT: The moment to ACT on HB 3000 is NOW!

Dear Oregon Autism Families and Advocates,
Our state of Oregon has a legislative session every two years.
This Spring, states all around us -
  • New Mexico,
  • Montana,
  • Colorado and, as recently as this past weekend,
  • Nevada,
have passed autism insurance reform legislation to provide their states' children with autism access to therapy coverage through health insurance.
Unless we get some significant traction on Oregon HB 3000 NOW, Oregon's children with autism will have to wait another two years before reform legislation can even be introduced again. HB 3000 provides coverage for medically necessary, evidence based therapies and treatments prescribed by your child's treating physician including ABA therapy, speech and OT.
Today is the moment to ACT to get HB 3000 out of the House Rules Committee and onto the floor of the Oregon House so that the legislative process can continue. It is very easy and only takes five minutes of your time each day--everyone's help is needed!

HERE IS HOW YOU CAN HELP!

1. CONTACT HOUSE RULES COMMITTEE CHAIRMAN REPRESENTATIVE ARNIE ROBLAN AT 503-986-1409 and ask him to give HB 3000 priority for a hearing!
Not sure of what to say? Just say this:
"Hi, my name is _________________. I live in ______________, Oregon. I am calling to ask that you allow a hearing and vote on HB 3000, the autism insurance reform bill. Thank you so much."
2. CONTACT SPEAKER DAVE HUNT AT 503-986-1200 and ask him to ask Chairman Roblan to hold a hearing for HB 3000.
Speaker Hunt pulled HB 3000 out of the House Health Committee and placed it in the Rules Committee on our behalf--he gave this bill a fighting chance when we needed it, but we might need his help again to keep it on the move!
Not sure of what to say? Just say this:
"Hi, my name is ______________. I live in __________, Oregon. I want to thank you for giving the autism insurance reform bill, HB 3000, a second chance to become a law this session. I am calling to ask you to please speak to Chairman Roblan of the Rules Committee and urge him to move HB 3000 to a hearing so that it can make its way to the House Floor for a vote. Thank you so much!"
3. PLEASE PASS THIS MESSAGE ALONG TO AS MANY PEOPLE AS YOU CAN.

Ask them to do the same thing and call Chairman Roblan and Speaker Hunt. They don't have to have a child with autism. They only need to be willing to help, able to dial a phone and say something along the lines of what we have posted above! Send the message to your child's teachers and therapists, your neighbors and coworkers, your family members and friends.

Your goal is to get this request into the hands of at least 20 people you know who will make the calls to support your family, your child and other Oregon children with autism!

For more information on HB 3000, visit www.autismvotes.org/Oregon.
----------

Happy Dialing! Thank you for your support of Oregon's children with autism!

Tuesday, May 19, 2009

ACTION ALERT: HB 3000 may be going to hearing! Calls needed NOW!

An ACTION ALERT from Autism Votes to CALL
the members of the Oregon House Rules Committee.

"...it is possible that HB 3000 [insurance reform bill] will be heard in the Oregon House Rules Committee THIS WEEK. We need to refresh our Representatives' minds about autism insurance reform and ask them to vote YES on HB 3000..."

See full message below for phone numbers and followup.
------------
5/19/09 Autism Votes... It's time for lawmakers to listen.

Dear Oregon Autism Advocate,

It has been a while since we sent out a reminder but we just heard that it is possible that HB 3000 will be heard in the Rules Committee this week. We need to refresh our Representatives minds about autism insurance reform and ask them to vote YES on HB 3000.

We must pass the Rules Committee and then HB 3000 is on it's way to the House floor for a vote and one step closer to becoming a law! If the bill does not get out of the Rules Committee, we will not be able to get appropriate coverage for our children until the next session in 2011.

We need your help to make some noise and let the committee know how very much you want this bill to pass on through the legislative process! They are hearing from the insurance companies...they need to hear from you!

Here is How You Can Help:

1. CONTACT THE MEMBERS OF THE RULES COMMITTEE AND ASK THEM TO VOTE YES FOR HB 3000! We need you to contact the following people each day until we tell you to stop and ask them to vote YES on HB 3000. If you are a constituent, be sure to let them know.

> CALL THE MEMBERS OF THE COMMITTEE! Calls are way more important than emails. They need to hear your voices and we need their phones ringing off the hook!

Representative Arnie Roblan, Chair - 503-986-1409
Representative Vicki Berger - 503-986-1420
Representative Chris Edwards - 503-986-1414
Representative Bill Garrard - 503-986-1456
Representative Sara Gelser - 503-986-1416
Representative Bob Jenson - 503-986-1458
Representative Mary Nolan - 503-986-1436
Representative Tobias Read - 503-986-1427

Not sure what to say? It's easy! Just say:

"Hi! My name is _________________________. I am calling to ask Representative _____________ to vote YES on HB 3000 and to allow HB 3000 to go to the House Floor for a vote. Thank you so much!"

> CLICK HERE TO FOLLOW UP WITH AN EMAIL TO ALL COMMITTEE MEMBERS! You don't need to know their email addresses, our system will send the email for you. It's easy!

2. MULTIPLY YOUR EFFORTS BY RECRUITING 20 PEOPLE YOU KNOW TO CALL TOO -- JUST FORWARD THIS MESSAGE TO THEM! We need to multiply our grassroots efforts exponentially over the course of the next few days and generate thousands of calls. Please forward this to anyone who can help make calls to the committee to ask them to vote YES for HB 3000. They do not have to have a child with autism to be supportive! Think outside the box to neighbors, family members, friends, coworkers - anyone you know who lives in Oregon who would make these calls for your child.


For more information on HB 3000 visit www.autismvotes.org/Oregon!

Keep dialing Oregon. Let's get this done for our kids this year!

Shelley Hendrix
Director of State Advocacy Relations
Autism Speaks

Monday, May 18, 2009

NEWSFLASH: Actuarial Cost Estimate for HB 3000

Don't forget that HB 3000 is in the House Rules Committee--
we need to keep contacting them!
Also see the
"FAQs when talking to elected officials".
Thanks for your efforts in supporting HB 3000
.
------------------
May 18, 2009
Actuarial Cost Estimate: Oregon House Bill 3000
[if you have difficulty downloading or viewing the cost estimate: try this link]
A Bill for an Act Relating to Autism Spectrum
Disorder- Creating New Provisions and
Amending ORS 414.710 and 743A.190

OLIVER WYMAN
Prepared By:
Marc Lambright, FSA, MAAA
25 Pages.

See also, Oregon's page at Autism Votes
http://www.autismvotes.org/Oregon

Thursday, May 7, 2009

ACTION ALERT: Take Action on HB 3000 to move it from Rules Committee to the House Floor!

An URGENT Take Action request from Autism Votes, some links from this blog site added for more background if desired, but WE MUST STEP UP CALLS AND EMAILS to make HB 3000 stand out from other bills, be voted to go to the House floor and to keep it moving to passage in this Legislative session. As the ACTION ALERT notes, if HB 3000 dies in this session, the next opportunity to submit a bill won't be until 2011--2 years from now, and implementation probably won't be for another year or 2 after that. We have bipartisan support, but HB 3000 MUST make it to House Floor in order for an opportunity for a vote!

Please respond to the action alert and keep contacting the legislators!
THIS IS OUR BEST SHOT.

05/06/09 Autism Votes... It's time for lawmakers to listen.

Dear Oregon Autism Advocate,

States all around us are passing autism insurance reform. As you know Oregon HB 3000 has been introduced in the Oregon legislature and if passed will provide Oregon's children with autism insurance coverage for treatments and therapies they need and deserve, including ABA therapy.

Our next hurdle is the House Rules Committee and then HB 3000 is on it's way to the floor of the House for a vote and one step closer to becoming a law!

If the bill does not get out of the Rules Committee, we will not be able to get appropriate coverage for Oregon's children until the next session in 2011.

We need your help to make some noise and let the committee know how very much you want this bill to pass on through the legislative process! They are hearing from the insurance companies...they need to hear from you!

Here is How You Can Help:

1. CONTACT THE MEMBERS OF THE RULES COMMITTEE AND ASK THEM TO VOTE YES FOR HB 3000! We need you to contact the following people each day until we tell you to stop and ask them to vote YES on HB 3000. If you are a constituent, be sure to let them know.

> CALL THE MEMBERS OF THE COMMITTEE! Calls are way more important than emails. They need to hear your voices and we need their phones ringing off the hook!

Representative Arnie Roblan, Chair - 503-986-1409
Representative Vicki Berger - 503-986-1420
Representative Chris Edwards - 503-986-1414
Representative Bill Garrard - 503-986-1456
Representative Sara Gelser - 503-986-1416
Representative Bob Jenson - 503-986-1458
Representative Mary Nolan - 503-986-1436
Representative Tobias Read - 503-986-1427

Not sure what to say? Follow this script:

"Hi! My name is _________________________. I am calling to ask Representative _____________ to vote YES on HB 3000 and to allow HB 3000 to go to the House Floor for a vote. Thank you so much!"

> CLICK HERE TO FOLLOW UP WITH AN EMAIL TO ALL COMMITTEE MEMBERS! You don't need to know their email addresses, our system will send the email for you. It's easy!

2. MULTIPLY YOUR EFFORTS BY RECRUITING 20 PEOPLE YOU KNOW TO CALL TOO -- JUST FORWARD THIS EMAIL TO THEM! We need to multiply our grassroots efforts exponentially over the course of the next few days and generate thousands of calls. Please forward this to anyone who can help make calls to the committee to ask them to vote YES for HB 3000. They do not have to have a child with autism to be supportive! Think outside the box to neighbors, family members, friends, coworkers - anyone you know who lives in Oregon who would make these calls for your child


Thanks for your time and effort. Please call them and follow up with an email every day. This is very important so that HB 3000 can continue through the legislative process on become a reality.

For more information on HB 3000 visit www.autismvotes.org/oregon!

Happy dialing!

Shelley Hendrix
Director of State Advocacy Relations
Autism Speaks

Newsstory & Comment: "Advocates push for autism services"

[Blog author note--HB 3000 is mentioned towards the end of this newsstory from the April 30, 2009 Statesman Journal.

Advocates push for autism services
Oregon lacks system to identify, treat kids, one lawmaker says
By Tracy Loew • Statesman Journal

[Blog author note and comment: The news story from the S-J illustrates as much as anything why HB 3000 must pass so that families of children with autism can access necessary therapy by health insurance coverage of the medical condition of autism-- if parents are "fighting", as stated in the news story, for FIVE hours a week of school-supplied therapy (The recommended amount is at least 25 hours of intensive programming per week year-round).

As a point of reference, there are parents in the state whose children are almost ready for ADULT SERVICES who were advocating for some of the stated changes when their children were preschoolers or early elementary age, and others who worked on the previous Caring for Oregon's Students with Autism Task Force created under SB 765 (1999), Oregon CHAPTER 1046, and studied the same issues and made recommendations in a produced Report almost TEN YEARS AGO .

Concrete action a little quicker than that is not a matter of preference or desiring change to "turn on a dime"--It is an overdue necessity.


The blog author does not want to face a dismal prospect of today's preschoolers with autism ten years into the future still waiting for change and ability to access competently delivered evidenced therapies at the appropriate intensity as recommended by the US Surgeon General in 1999, the National Academies of Science in 2001, and the American Academy of Pediatrics in 2007]


Wednesday, May 6, 2009

Cover story KATU news, Portland: "House bill to help cover costs of Autism "

Broadcast Wed. May 5, 2009 during the 4PM news broadcast
at KATU, Channel 2, Portland, Oregon

"Oregon has one of the highest rates of children with Autism in the US, yet the state has not been able to pass legislation to help parents with the burden of treating their children. A bill stuck in the house [HB 3000 in the House Rules Committee] right now would force insurance companies to help, and dozens of families are counting on that bill to help ease the financial burden."




Thank you to Lisa and John McHenry for sharing their story and
thank you to KATU for sharing it with the public!

ADVOCACY: Keep the emails, letters and calls up! HB 3000 is in the House Rules Committee

HB 3000 has officially been moved to Rules thanks to the
Speaker of the Oregon House!


Parents and supporters are asked to write, email and call members of the House Rules Committee and also those in the
Senate Healthcare and Veterans Affairs Committee concurrently and to also contact your district representatives to let them know you support HB 3000.

Phone numbers, email addresses and mailing addresses below.

Don't forget to ask family, friends and neighbors to support HB 3000.
on behalf of your family and your child(ren)!


Another hearing is anticipated this month, and let's see if we can get HB 3000
onto the floor of the Oregon House for a vote!



House Rules Committee,
House Rules Committee Agendas
Office: 453, Phone: 503-986-1532
Staffing: Jerry Watson, Mike Reiley

Membership


Rep. Arnie Roblan, Chair, (D-9-Coos Bay) 503-986-1409,
rep.arnieroblan@state.or.us
900 Court St NE, H-272, Salem,, OR, 97301

Rep. Vicki Berger, Vice-Ch. (R-20-Salem) 503-986-1420,
rep.vickiberger@state.or.us
900 Court St. NE., H-479, Salem, OR, 97301

Rep. Chris Edwards, Vice-Ch. (D-14-Eugene) 503-986-1414,
rep.chrisedwards@state.or.us
900 Court St. NE, H-283, Salem, OR, 97301

Rep. Bill Garrard (R-56-Klamath Falls) 503-986-1456,
rep.billgarrard@state.or.us
900 Court St. NE., H-480, Salem, OR, 97301

Rep. Sara Gelser (D-16-Corvallis & Philomath) 503-986-1416,
rep.saragelser@state.or.us
900 Court St. NE H-285, Salem, OR, 97301

Rep. Bob Jenson (R-58-Pendleton) 503-986-1458,
rep.bobjenson@state.or.us
900 Court St. NE., H-481, Salem, OR, 97301

Rep. Mary Nolan (D-36-Portland) 503-986-1436,
rep.marynolan@state.or.us
900 Court St. NE., H-295, Salem, OR, 97301

Rep. Tobias Read (D-27-Beaverton) 503-986-1427,
rep.tobiasread@state.or.us

900 Court St. NE, H-490, Salem, OR, 97301


Senate Health Care and Veterans' Affairs
Senate Health Care and Veterans' Affairs Committee Agendas
Office: 453 Phone: 503-986-1530
Staffing: Robert Shook, Cassandra Strauch

Membership:

Laurie Monnes Anderson, Chair (D-25-Gresham) 503-986-1725,
sen.lauriemonnesanderson@state.or.us
900 Court St. NE., S-413, Salem, OR, 97301

Jeff Kruse, Vice-Chair (R-1-Roseburg) 503-986-1701
sen.jeffkruse@state.or.us
900 Court St. NE., S-316, Salem, OR, 97301

Alan C Bates (D-3-Ashland) 503-986-1703

sen.alanbates@state.or.us
900 Court St. NE., S-205, Salem, OR, 97301

Bill Morrisette (D-6-Springfield) 503-986-1706
sen.billmorrisette@state.or.us
900 Court St. NE., S-207, Salem, OR, 97301

Frank Morse (R-8-Albany) 503-986-1708

sen.frankmorse@state.or.us
900 Court St. NE., S-311, Salem, OR, 97301


"Write your" local State Representatives
Automated form at the State Legislature website

NEWSFLASH: Wed. 5/6, 4:00PM-- HB 3000 on Portland Channel 2/KATU

We've been given the heads-up that KATU, Portland Channel 2, will be covering HB 3000 and autism on their news broadcast at today, Wednesday, May 6 at 4:00PM.

KATU News also has a live online streaming option.

(It's not known yet whether this will be rebroadcast in the later newscasts at 5:00 PM, 6:00PM or 11:00PM, but we'll post that info if it becomes available.)

We'll include a link to what gets posted at the KATU website as it becomes available.

Don't forget to tune in!

Monday, May 4, 2009

Letter to the editor: "Cover Autism Therapy"(

Letter to the Editor in The Oregonian from a Portland mother.
(Good job Danni McLaughlin!)

Note: KEEP these letters and include them with YOUR letters to legislators to show that this is a matter of public interest and that the issue is in the public venue.
As one minor correction, at this time TEN ELEVEN states have passed mandates covering behavioral therapy for minors with autism: IN, SC, TX, AZ, LA, FL, IL, PA, NM and most recently--MT and CO. (Blog author note: Colorado passed their mandate May 5!)

NV looks as if it is poised to pass their mandate bill. These states recognize that their children--their citizens--need this support and access to behavioral treatment.
Oregon should do no less.

Oregonian - Letters to the editor: Autism Funding May 2, 2009

Cover autism therapy

How nice for State Rep. Mitch Greenlick that he only has to ponder whether or not behavior therapy would help all children with autism, all the time, with all its symptoms ("A struggle to defeat autism and its costs," April 29).

Is there a single medical protocol with a 100 percent success rate for all afflicted?

I have a child with autism, so I can tell you that behavioral therapy works wonders. It is a remarkable tool that changes kids' and families' lives. It isn't invasive, it requires no expensive equipment and the skills can be taught and used at home and in school.

Can you imagine being told that your child's needed speech, occupational, physical and behavioral therapies are not covered by insurance? Note that these same policies cover addicts, the obese and smokers.

Oregon's autism rate is among the highest in the nation. Funding treatment that helps children with autism become productive, able, self-directed citizens is a vital investment. Please ask your legislators to add Oregon to the list of nine other states that have already passed this critical insurance reform.

DANNI McLAUGHLIN
Southwest Portland

Sidebar: "Educating Children with Autism Statewide Conference"


This came in the email today, and while not immediately concerned with HB 3000,[Requires health insurers and state medical assistance program to reimburse for diagnosis and treatment of autism spectrum disorder.] might be of interest to those who are interested in autism treatment and what the state of Oregon is proposing to do in educating our children.
Oregon House Representative Chris Edwards will be sharing legislative updates


Educating Children with Autism
Statewide Conference
Saturday, May 16, 2009
Portland Memorial Coliseum meeting rooms, Rose Quarter
www.ceed.pdx.edu/autismconf
(Breakfast and lunch are included in the conference fee of $45-55)


Please join us for an exciting day focused on the education of children with autism spectrum disorder. Highlights of the conference:

The keynote speaker, Dr. Laura Schreibman, professor at University of California at San Diego , will be speaking on The Science and Fiction of Autism”.


Dr. Schreibman will also do a session on the latest research for Pivotal Response Training (PRT). Additionally there will be 20 breakout sessions on a variety of topics presented by specialists throughout Oregon .

Representative Chris Edwards will provide an update on the latest legislative agenda in the area of autism.


The conference will focus on current instructional strategies used in Pre-k through 12th grade classrooms and will also provide practical field-tested suggestions. There will also be a strand on school, family and community partnerships.

The workshops are designed to be a resource for people who are new to the field of autism training as well as those with advanced knowledge and experience.

-----------

Conference and registration information are available at:

www.ceed.pdx.edu/autismconf

(Breakfast and lunch are included in the conference fee of $45-55)

Venue: Portland Memorial Coliseum meeting rooms, Rose Quarter

Maps, directions and parking information available on the conference website

----------------


Tuesday, April 28, 2009

From the Oregonian on ABA and HB 3000


Families of the autistic struggle with care and costs
by Bryan Denson, The Oregonian Tuesday April 28, 2009, 7:22 PM
Photos by Benjamin Brink/The Oregonian

Annotated excerpts with links to additional info; comments in red.

"Joe Joe McHenry, 4, uses toys to learn pronouns during a recent morning session with autism behavioral therapist Emily Hoyt. Joe Joe's mom, Lisa McHenry, says the intensive therapy has been vital to his development.
...But McHenry was astonished to learn that her health insurance didn't cover a penny of the expensive treatment...
Autism is also on center stage in Salem, and for good reason. U.S. prevalence of the brain disorder is about 1 in 150, according to the Centers for Disease Control and Prevention [1], but some estimates based on school data put Oregon's rate as high as 1 in 87 [2]. Policymakers warn of an approaching "autism tsunami" that will wash over the state's already troubled educational systems...
autism advocates and insurers are squared off over House Bill 3000. The proposed law would require insurance companies to pay up to $36,000 a year for Oregonians younger than 21 enrolled in the kind of intensive behavioral therapy Joe Joe McHenry undergoes....
[Blog Author note: The key phrase being "up to". While the most challenged children may require the entire amount specified under the cap, many children will probably require less and the cost should decrease with improvement through treatment, since the goal is to intervene early, and enable as many children to enter elementary school with no, or minimal aids. Some students will require more support and intervention. Cost analyses done by the actuarial firm of Oliver Wyman Actuarial Accounting, Inc., cites figures of a 0.1% increase in per policy cost in Texas since the passage of their mandate in 2007, with estimated per-policy costs for other states well under 1% (range 0.36- 0.75%)[3][4][5][6]. This corroborates with data from the states of Indiana and Minnesota which have had this coverage for several years [7]. In South Carolina, since passage of their autism insurance reform mandate, some insurers who were not required to provide the coverage under the law are choosing to do so voluntarily [8]. Canada's fiscal study of current cost vs. future savings assessed that current investment in intensive behavioral therapy will represent a future fiscal savings. [9] ]

Insurance companies generally pay for drugs that improve symptoms of autism. But they have been slow to embrace the concept of paying for the kind of behavioral therapy Joe Joe undergoes, describing it as not medically necessary [10] or experimental in nature [11].

This bewilders Laura Schreibman, Ph.D., a veteran autism researcher at the University of California at San Diego [12]...Though scientists are far from agreeing on the origins of autism, Schreibman believes it is a neurodevelopmental disorder present from birth that appears to be genetic. It is clearly a medical issue, she said...
"There's no other form of treatment for children with autism that's been demonstrated -- I mean empirically demonstrated [13] -- to be effective with these kids," Schreibman said. "I just don't know how much research and how much literature has to amass [14] before insurance companies are going to say, 'Yeah, OK.'"

FULL ARTICLE

-------------------------------
  1. Prevalence of the Autism Spectrum Disorders in Multiple Areas of the United States, Surveillance Years 2000 and 2002. Centers for Disease Control and Prevention, Department of Health and Human Services. Date March 11, 2009 Content source: National Center on Birth Defects and Developmental Disabilities. Accessed April 28, 2009.
    http://www.cdc.gov/ncbddd/dd/addmprevalence.htm

  2. "Services Aren't Keeping Up With Autism". Oregon Public Broadcasting (OPB) News. August 20, 2008.
    Accessed April 28, 2009.
    http://news.opb.org/article/2871-services-arent-keeping-autism/

  3. Actuarial Cost Estimate: Georgia Senate Bill 161 An Act Relating to Insurance Coverage for Autism Oliver Wyman Actuarial Consulting, Inc., Marc Lambright, FSA, MAAA, March 2, 2009
    From Autism Votes

  4. Actuarial Cost Estimate: Kansas Senate Bill 12 An Act Relating to Insurance Coverage for Autism Oliver Wyman Actuarial Consulting, Inc., Marc Lambright, FSA, MAAA, March 2, 2009
    Addendum

    From Autism Votes

  5. Presentation by Lorri Unumb, Esq., Senior Policy Analyst, Autism Speaks, in public testimony to the Oregon House Health Care Committee, April 8, 2009.

  6. Lorri Unumb, Esq., Senior Policy Analyst, Autism Speaks. (Personal communication)

  7. Motiwala, S. S., Gupta, S., & Lilly, M. B. (2006). The cost-effectiveness of expanding intensive behavioural intervention to all autistic children in Ontario [Canada]. Healthcare Policy, 1(2), 135-151.

  8. One definition: MEDICALLY NECESSARY – means any care, treatment, intervention, service or item which will or is reasonably expected to do any of the following: (i) prevent the onset of an illness, condition, injury, disease or disability; (ii) reduce or ameliorate the physical, mental or developmental effects of an illness, condition, injury, disease or disability; or (iii) assist to achieve or maintain maximum functional activity in performing daily activities."

  9. Petitioner File No. 85641-001.STATE OF MICHIGAN DEPARTMENT OF LABOR & ECONOMIC GROWTH OFFICE OF FINANCIAL AND INSURANCE SERVICES Before the Commissioner of Financial and Insurance Services. Issued and entered 11/27/2007.
    In the matter of XXXXX v Blue Cross Blue Shield of Michigan, Respondent
    http://www.michigan.gov/documents/dleg/85641_BCBSM_11-27-07.pdf_222301_7.pdf
    Accessed April 28, 2009.
    Determined that ABA was an appropriate covered benefit, not educational and not experimental.

  10. UCSD Autism Research Program, University of California, San Diego
    Accessed April 28, 2009.

  11. Applied Behavior Analysis and Neurodevelopmental Disorders: Overview and Summary of Scientific Support. Louis P. Hagopian & Eric W. Boelter. The Kennedy Krieger Institute and Johns Hopkins University School of Medicine. Accessed April 28, 2009.
    http://www.kennedykrieger.org/kki_misc.jsp?pid=4761

  12. Summaries of Research Evidence EIBI Comprehensive Interventions. p. 9-11, 13-16, from The Science and Art of Behavioural Autism Interventions: Designing Programs with Evidence and Compassion. Shahla Alai-Rosales, Ph.D., BCBA. February, 2009.
    ,

Monday, April 27, 2009

HB 3000 Goes to the House Rules Committee

At the House Health Care Committee meeting today 4/27/09, HB 3000 was referred on consensus to the House Rules Committee without recommendation. The alternative to this referral was that HB 3000 would have died in Committee without action having been taken.

This decision can be heard on the audio transcript (clip 1) at about 14:00-18:46.

Representative Kennemer asked whether this was to Rules to be "ruled" on, or to the "Rules Cemetery". Representative Bruun added the comment that HB 3000 had value and was viable by amendment to use of "current best practices" rather than specific treatment modality in order to give the bill flexibility and to give petitioners and advocates the support required.

The reply of Chairman Greenlick was that the matter would now be in the Rules Committee's hands.

Composition of the Rules Committee,

Rep. Arnie Roblan, Chair, (D-9-Coos Bay) 503-986-1409, rep.arnieroblan@state.or.us
Rep. Vicki Berger, Vice-Ch. (R-20-Salem) 503-986-1420, rep.vickiberger@state.or.us
Rep. Chris Edwards, Vice-Ch. (D-14-Eugene) 503-986-1414, rep.chrisedwards@state.or.us
Rep. Bill Garrard (R-56-Klamath Falls) 503-986-1456, rep.billgarrard@state.or.us
Rep. Sara Gelser (D-16-Corvallis & Philomath) 503-986-1416, rep.saragelser@state.or.us
Rep. Bob Jenson (R-58-Pendleton) 503-986-1458, rep.bobjenson@state.or.us
Rep. Mary Nolan (D-36-Portland) 503-986-1436, rep.marynolan@state.or.us
Rep. Tobias Read (D-27-Beaverton) 503-986-1427, rep.tobiasread@state.or.us


Staffing: Jerry Watson, Mike Reiley
Office: 453, Phone: 503-986-1532


Link to the Rules Committee's Agenda page

A Busy Work Session and a Crucial Deadline

HB 3000, the Autism Insurance Reform Bill,
is scheduled for a work session today, April 27, 2009,
at 3PM, Hearing Room D, State Capitol.
TODAY
See the note below about legislative calendars!

  • The Agenda for the 4/27/09 meeting of the House Health Care Committee
    [It looks like there are 5 bills scheduled for public hearing, and 15 bills carried over from the 4/24 meeting for work session.]

An important note about legislative calendars

According to the Oregon Academy of Family Physicians 2009 Legislative Report,
"April 28 deadline for moving bills out of first committee
Friday, April 17 was the deadline for scheduling work sessions for bills in the chamber of origin. The next deadline is April 28. By then, committees must take action on those bills. [Blog author note: HB 3000 was scheduled for the work schedule--but action must be taken on it by the House Health Care Committee by Tuesday, April 28, 2009 for it to remain an "active" bill without special measures to revive it.]
These internal deadlines help winnow the field of bills under consideration. Hundreds of bills will drop off the radar screen for lack of action, either on the 17th or by the 28th.
But it’s important to remember that no bill is really dead until the session gavels to an end. While it is unlikely that dead bills will be revived, it’s not impossible.
Policy committees will spend May considering bills that have passed the other chamber."

[This has some relevance to why this particular Committee Meeting has so many bills to address. There was a comment by Representative/Chairman Greenlick in the 4/24/09 meeting that HB 3000 is intended to be sent to the Rules Committee. If done so today, this would mean that action was taken in the first committee, and HB 3000 will still be active and in play!]

Saturday, April 25, 2009

Reminder: April 29 is Autism Advocacy Day at the Capitol!

Information on Autism Advocacy Day, April 29, 2009, Room 350, State Capitol, Salem, Oregon

With HB 3000 the Autism Insurance Reform Bill, the formation of the Governor's Commission on Autism, and other policy developments-this may be the most important Advocacy Day ever!

See below flyer for RSVP information and schedule of events

Visitor Services Phone: 503-986-1388
Americans with Disabilities Act (ADA) Resources at the Capitol

Join Us April 29 for Autism Day at the Capitol!

HB 3000 Carried Over to Monday 4/27 Health Care Committee Mtg.

Due to the number of bills considered in the 4/24/09 meeting, the work session on HB 3000 by the
------------------------------

House Health Care Committee has been carried over to
Monday, April 27, 2009
Time: 3:00 P.M.
Hearing Room D
Oregon State Capitol, Salem, Oregon


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It was stated in the audio transcript that there is a possible intention to send HB 3000 to the House Rules Committee, but no action has yet been taken to do so. (This statement was made in the last 6 minutes of the audio.)
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As an initial heads-up/FYI, IF HB 3000 is sent to the Rules Committee, those members are,

Rep. Arnie Roblan, Chair, (D-9-Coos Bay) 503-986-1409, rep.arnieroblan@state.or.us
Rep. Vicki Berger, Vice-Ch. (R-20-Salem) 503-986-1420, rep.vickiberger@state.or.us
Rep. Chris Edwards, Vice-Ch. (D-14-Eugene) 503-986-1414, rep.chrisedwards@state.or.us
Rep. Bill Garrard (R-56-Klamath Falls) 503-986-1456, rep.billgarrard@state.or.us
Rep. Sara Gelser (D-16-Corvallis & Philomath) 503-986-1416, rep.saragelser@state.or.us
Rep. Bob Jenson (R-58-Pendleton) 503-986-1458, rep.bobjenson@state.or.us
Rep. Mary Nolan (D-36-Portland) 503-986-1436, rep.marynolan@state.or.us
Rep. Tobias Read (D-27-Beaverton) 503-986-1427, rep.tobiasread@state.or.us


Staffing: Jerry Watson, Mike Reiley

Office: 453, Phone: 503-986-1532

Link to the Committee's Agenda page

Thursday, April 23, 2009

Excellent WA Article Covering the Issues of Treatment & Coverage

REMINDER: GET YOUR CALLS, EMAILS AND TESTIMONY
IN SUPPORT OF HB 3000 : Requires health insurers and state medical assistance program to reimburse for diagnosis and treatment of autism spectrum disorder.
IN TODAY!

The bill MUST BE approved in the House Health Care Committee to have a chance to go to the full Oregon House! See yesterday's post for who and how to contact.

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Excellent WA article summing up the situation and the points of view; while from our neighbors to the north, the issues are the same in Oregon.

Popular autism treatment often goes uncovered
By DEBBIE CAFAZZO, The News Tribune
October 12, 2008, updated Nov. 21, 2008


Talking points from the story:

INSURERS: Argue autism treatments aren't really medical, but are more educational and that education is the responsibility of the public schools. Can't cover teachers or paraprofessionals or parents who have training in ABA. Medical and rehabilitation services through licensed providers covered [pediatrician, psychologists, OT, PT, Speech].
[Comments: Autism is a medically defined and diagnosed disorder. The state can, and has in those states that have already passed such mandates, assist in determining competencies of service deliverers, and many of the mandate bills include such provisions, including those who are
Board Certified Behavior Analysts , awarded certified status dependent on meeting conditions of required education, practical supervised experience, passage of an examination and ongoing education in applied behavior analysis, The licensed professionals cited by the insurance representatives, while competent in their own subject area, may not have appropriate or specific training in ABA. The services of OT, PT and Speech are necessary as part of a multidisciplinary treatment team, but to deliver behavior analytic treatment, the team must also include behavior analysts to supply competently delivered applied behavior analysis.]


SCHOOLS: Schools can't go it alone. The Federal government does not provide enough funding through IDEA, and local funds are insuffient as well. Children would be unlikely to get intensive 1:1 ABA. Not something one agency is responsible for and needs multiprong approach.
[Comments: IDEA is now and historically underfunded. Local funds have multiple demands, and are not always stable, as well as insufficient. Underproviding therapy by lack of intensity has been shown to undercut effectiveness of therapy, with threshholds where a "little" ABA is not that different from "no" ABA. The schools have a valid point that they are unreasonably expected to deliver behavioral health for a complex medical disorder requiring intensive treatment, without support of the usual medical entitities. ]


FAMILIES : Spending through IRAs, spending through savings, cutting back on personal expenditures, but seeing big benefits of ABA therapy. Sometimes have to stop because they no longer can afford. One spouse has to stop working to take care of the child because professional services not provided. The insurance covered services of OT, PT and speech through licensed providers have per year visit limits, so they have to cut back or suspend treatment when coverage ends until next eligibility period.
[Comments: Families purchase or count on health insurance as part of employment package in anticipation of avoiding financial disaster in the event of a catastrophic medical event. Current situation is that they can have health insurance and STILL have to suffer financial disaster because treatment excluded, or face the frustrating scenario of knowing they will receive less than the recommended hours of therapy because of limits in a quarter or year. Equivalent would be rationing medication for a chronic condition or giving partial treatment, or suspending treatment from time to time for an acute condition--expensive and less effective because insufficient].


SOME POLITICIANS: Schools already have multiple demands and kids can't be left to be cared for by the schools. Mandating coverage treatments and ABA treatment ultimately saves taxpayer dollars because early treatment reduces life risk of being permanently dependent [at higher cost] on the state as adults, and may allow mainstreaming in typical schools by 8 or 9. Saves money in the long run.
[Comments: These politicians are taking the long, and arguably, the correct view on social policy. Access to health care is a social question. From a financial and societal cost view, sufficient expenditure upfront for competent and necessary medical treatment can reduce lifelong cost per child/person by millions of dollars over the lifespan, and at current conservative prevalence of 1/150 this longterm cost will be a potentially frightful public expenditure. One might also argue that it keeps parents in the workforce, reducing their lost revenue, and with better outcomes, the children have higher probability as future taxpayers or at least require reduced public support as adults.]

Monday, April 20, 2009

ACTION ALERT!!: Who's voting YES, and...NO on HB 3000

WE ARE DOWN TO THE WIRE
to persuade the House Health Care Committee to vote YES on HB 3000
PLEASE GET CALLS, EMAILS & TESTIMONY IN : THE COMMITTEE MEETS FRIDAY 4/24

The following Oregon representatives on the House Health Care Committee have NOT yet indicated their support of HB 3000: Requires health insurers and state medical assistance program to reimburse for diagnosis and treatment of autism spectrum disorder.

HB 3000 MUST BE APROVED BY THIS COMMITTEE to make it to the NEXT STEP of being heard on the floor of the Oregon House.
  • Please be sure to CALL them, and ask them to vote YES for the bill when it is heard in the work session on Friday, April 24, 3PM, Hearing Room D, State Capitol!
  • Follow up phone calls with an email to the members of the committee who have not yet committed to support HB 3000.
Not yet committed to support HB 3000

The following representatives HAVE indicated their initial SUPPORT of HB 3000.
Please THANK them for their support and ask for their CONTINUED support with a YES vote on Friday at the work session!

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Action Alert issued from Autism Speaks

A message from Autism Speaks,

"Dear Oregon Autism Advocate,

As you know HB 3000 has been introduced in the Oregon legislature that if passed will provide autism insurance reform for Oregon's children with autism to cover the treatments and therapies they need and deserve, including ABA therapy.

Now we have to get it through the Health Care Committee and on it's way to the floor so that it can become law!

We need your help to make some noise and let the committee know how very much you want this bill to pass on through the legislative process! They are hearing from the insurance companies...they need to hear from you!

HERE IS HOW YOU CAN HELP

1. CONTACT THE MEMBERS OF THE OREGON HOUSE HEALTH CARE COMMITTEE AND ASK THEM TO VOTE YES FOR HB 3000 EVERY DAY UNTIL THE MEETING ON FRIDAY!
The committee will be having a work group session this Friday, April 24, at 3pm. We need you to contact the following people each day between now and then and ask them to vote YES on HB 3000. If they indicate their support then be sure to thank them and ask for their continued support in the commitee. If you are a constituent, be sure to let them know. Keep your conversations short and polite. Then follow up in an email.
NOTE: Calls are way more important than emails. They need to hear your voices!


The following representatives have NOT yet indicated their support of HB 3000. Please be sure to ask them to vote YES for the bill when it is heard in the work session on Friday!
Please call them and follow up with an email EVERY DAY.
Use the Subject Line: I support HB 3000 .

Rep. Ron Maurer (R-3-Josephine Co.)-(503) 986-1403 rep.ronmaurer@state.or.us
Rep. Scott Bruun
(R-37-West Linn) - (503) 986-1437 rep.scottbruun@state.or.us
Rep. Jim Thompson (R-23-Dallas+) - (503) 986-1423 rep.jimthompson@state.or.us
Rep. Chris Harker (D-34-Washington Co.) - (503) 986-1434 rep.chrisharker@state.or.us
Rep. Michael Dembrow (D-45-Portland) - (503) 986-1445 rep.michaeldembrow@state.or.us

The following representatives have indicated their initial support of HB 3000. Please THANK them for their support and ask for their continued support with a YES vote on Friday at the work session!
Use the Subject Line: I support HB 3000 .

Rep. Ben Cannon (D-46-Portland) - (503) 986-1446 rep.bencannon@state.or.us
Rep. Chris Garrett (D-38-Lake Oswego) - (503) 986-1438 rep.chrisgarrett@state.or.us
Rep. Bill Kennemer (R-39-Oregon City+) -(503) 986-1439 rep.billkennemer@state.or.us
Rep. Tina Kotek (D-44-NE Portland) - (503) 986-1444 rep.tinakotek@state.or.us

2. ATTEND THE WORK GROUP ON FRIDAY, APRIL 24 AT 3PM.
Hearing Room D, State Capitol, Salem Oregon.

This will not be a hearing and no one's testimony will be heard but we would like parents to pack the room so that they can realize that Oregon citizens have a vested interest in HB 3000 and are watching them cast their vote. Wear Red. Bring signs in support of HB 3000 and pictures of your children.


3. FORWARD THIS MESSAGE TO EVERYONE YOU KNOW IN THE STATE OF OREGON!
We need to multiply our grassroots efforts exponentially over the course of the next few days. We need to generate thousands and thousands of calls. Please forward this to anyone who can help make calls to the committee to ask them to vote YES for HB 3000. They do not have to have a child with autism to be supportive!


THANKS FOR YOUR TIME AND EFFORT. Please call them and follow up with an email EVERY DAY.
This is very important so that HB 3000 can continue through the legislative process on become a reality.


For more information on HB 3000 visit our website at www.autismvotes.org/oregon !

Happy dialing!

Shelley Hendrix
Director of State Advocacy Relations
Autism Speaks
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